I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007, and the diagnosis was changed to Essential Myoclonus. Then in 2010 I was diagnosed with Type II Diabetes. Finally, after a muscle biopsy, it was determined that I have Mitochondrial Myopathy.

Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

"But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint." Isaiah 40:31 KJV

Tuesday, December 06, 2011

Visible vs Invisible Disabilities

It's absolutely amazing how wonderfully helpful and concerned total strangers have been since I started wearing the neck brace out in public! Not only are they helpful, but they also strike up a conversation with me, usually asking if I was in an automobile accident. We ate lunch out yesterday, and a waiter who wasn't even taking care of us stopped by to ask what was wrong with my neck! I can't imagine that people would be so interested if I had an arm in a sling. So I think at least part of their questioning is that people "enjoy" hearing stories about wrecks! LOL!

But I digress. This sudden "visibility" (that I have avoided for so long out of self consciousness) affirms that most people have a kind heart toward those with disabilities, but they are usually too preoccupied with themselves to notice those who are struggling with everyday activities. I must work at being more conscious of others when I am in public.

I think of all the people dealing with the various Movement Disorders who don't use a cane or walker, but who find even walking around to be difficult. I'm sure most don't want to be seen as disabled, but I'm sure they would all appreciate the little kindnesses, like holding a door open for them. But without that "hit them over the head with it" obvious indication of limited abilities - people just don't notice they could use a little extra TLC.

I know that has been true for me for a long time. I've been uncomfortable with the idea of being seen as handicapped, although I've been grateful to have and use a Handicap Sticker for the car. But I've also been saddened that friends didn't notice that I'm struggling. Then I start fussing at myself that I'm having a pity party and to get over it. I can't have it both ways, I tell myself. I don't want to be one of these people who is constantly listing all their current ailments, aches, and pains, so it's my lack of voicing how I'm doing that prevents people from realizing I'm having troubles.

The neck brace has very quickly changed all that. It's a shame it took using it to cause people to notice the problems I have had for a long time with simple activities like walking.

2 comments:

Anji said...

That's something positive! It seems to be bringing out the best in people. It's nice to read that you are getting out and about.

Any news on the biopsy?

Dirty Butter said...

Biopsy was yesterday, so I'm hurting pretty bad and not able to move my arm. I'm glad he didn't take it from my leg.

It will be 3 weeks before all the tests are complete.