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Day by Day with a Movement Disorder

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is ESSENTIAL MYOCLONUS. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

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Day by Day with a Movement Disorder

I was diagnosed with Parkinson's Disease and Peripheral Neuropathy in 2006, but my symptoms seemed to take a turn in a different direction in late 2007. The current diagnosis is ESSENTIAL MYOCLONUS. Share my journey - coping with the testing, the medicines, nutrition, digestion problems, exercise, the emotions, uncertain diagnoses and no telling what else!

Thursday, October 02, 2008

Reasons for LTC Rejection

Well, I finally quit playing phone tag with the Long Term Care specialist we have been dealing with, so I now know what the red flag was, or maybe I should say the accumulation of little red flags were.

The main reason I can not get Long Term Care Insurance is not that I have Essential Myoclonus, but my family history. It doesn't look good on paper, that's for sure.

Mama had some form of Dementia for over 10 years, at first diagnosed as Senile Parkinson's, but eventually she was medicated and behaved like someone with Alzheimer's. Her brother died of ALS, Lou Gherig's Disease.

And my Granddaddy on the other side of the family probably had Alzheimer's, too. I was so angry with my Grandmother for years for treating him like a child. Hindsight, a little age on me, and lots of experience dealing with two parents (my Mama and hubby's Pop) with Alzheimer's, lets me look at the situation with different eyes, and I think I have been unfair to her all these years. He DID act like a child.

Plus ... Daddy's sister lived her whole life with what might be diagnosed today as bipolar disease, having long bouts of alcohol and drug abuse, punctuated with times of great artistic talent and happiness. I remember her being in the psychiatric ward on the top floor of a local hospital sometime during my early teens. She was what people used to call a mean drunk.

Add to that my own Movement Disorder, Mild Sleep Apnea, use of a cane in unsure territory, unstable gait, slight swallowing problems, major digestive system problems, including severe GERD, Osteopenia, and who knows what else, and I can see why an insurance company would consider me to be a bad risk. I am not mad about it, or even upset. It was worth trying, and the agent really thought it might be possible, so I did all I could do.

But we are proceeding with getting LTC for hubby. It might be the difference in being able to keep the two of us together "until death do us part", and that sounds good to me. It's creepy putting that on paper, really thinking about one of us dying, but it's going to happen unless Jesus comes again first!!!

We have our wills in order, Power of Attorney's and Health Care Proxies are in place, and cemetery plots were bought many years ago. So we have done what we can to make this time easier on our children and on the surviving one of us.

I am thankful that I can look forward to many good years with my wonderful sweet hubby, who is life itself for me. We complete each other in a way that really makes "and the two shall be one" make perfect sense. We have two loving daughters, great son-in-laws, and three precious grandchildren. We enjoy life and each other.

Living right now, today, this moment, to the fullest ... that's what it is all about. We have done what we can to be the wise virgins who bought oil, trimmed our wicks, and came prepared for the wedding feast. The future will take care of itself.

2 Comments:

  • At 10/28/2008 4:03 PM , Anonymous flattoutbamafam said...

    As one of the "loving daughters", Mama, no one could have been better "wise Virgins". You truely have done everything in your power to make whatever happens easier on us.
    I will agree its "creepy" reading that on paper, but you can't go anywhere anytime soon. Who would I make brownies for?
    If you are reading this post, please know from the eldest daughter that God could have never given any girls better, more loving and supportive parents (and trust me, I was a trial...well, still am :) )

     
  • At 10/28/2008 4:22 PM , Blogger Dirty Butter said...

    Well Hi there DD!! I've never had anyone who knew me personally, let alone a family member, even read these blog posts. So this was quite a surprise!!!

    Trial? No... handful yes!! But what child isn't??? Never a regret, that's for sure.

    Love and {{{HUGS}}}

    Mama

     

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